CareClinic App is available on:
Porphyria Symptom Tracker: Your Health Assistant
Living with Porphyria means dealing with abdominal pain, sensitivity to light, skin blistering, and more. But here's the truth: Data is your most powerful tool. Every logged symptom reveals patterns—so you can take informed action.
Porphyria involves abnormal porphyrin production affecting skin and/or nervous system. Tracking triggers helps prevent attacks.
Key Porphyria Symptoms You Should Track
Struggling with symptoms like these? Tracking them reveals patterns, triggers, and how they impact your daily life.
Abdominal pain
Sensitivity to light
Skin blistering
Neurological symptoms
Psychiatric symptoms
Reddish urine
Muscle weakness
Track Your Porphyria Treatments
Tracking how these common treatments affect your symptoms can help you and your healthcare provider optimize your care plan:
Our tracker helps you monitor when you take medications and how they affect your symptoms over time.
⚡ Knowledge Is Your Superpower
The difference between feeling overwhelmed by Porphyria and feeling in control starts with data. When you track your symptoms, you transform uncertainty into clarity. Every data point brings you closer to understanding your unique patterns.
It's free to try for anyone—whether you're managing your own condition, supporting a child, helping an aging parent, or assisting a partner. Our tracker adapts to your specific role in the health journey.
Your Complete Porphyria Management Toolkit
Uncover Patterns & Insights
Map your Porphyria symptoms like a detective solving a case.
Understand Your Medication's Impact
Turn guesswork into strategy. See how treatments affect your well-being with clear health insights.
🔍 Evidence-Based Advocacy
Enter your next appointment prepared with comprehensive data.
Other Tools You May Like...
Plus 2 more specialized tracking tools available
Access All Tracking ToolsAlso Supports Other Conditions Like
Acute Intermittent Porphyria Tracker
Acute Intermittent Porphyria warriors use our tracker to monitor severe abdominal pain, nausea.
Hereditary Coproporphyria Tracker
Hereditary Coproporphyria warriors use our tracker to monitor Acute attacks: severe abdominal pain, nausea, vomiting, constipation, rapid heart rate, high blood pressure, pain in limbs/back/chest, muscle weakness, numbness/tingling, anxiety, confusion, seizures, reddish-brown urine, Skin symptoms (less common): blistering, fragility on sun-exposed areas.
Success Stories from Our Community
"The combination of the Symptom Tracker and Safety Tracker gave me insights I couldn't get from my doctor. After misdiagnosis after misdiagnosis, but the tracker helped me reduced my symptoms significantly."
"I discovered that treating my related health issues had a dramatic effect on my Porphyria. This holistic approach has been game-changing for my overall health."
Take Control of Your Porphyria Journey
Transform from feeling like a passive patient to becoming an informed self-advocate. Join thousands who've discovered new insights about their condition.
Designed by people who understand the daily challenges of managing chronic conditions, we're here to support you and your ❤️ ones.
Download Your Porphyria Tracker NowYour Data is Protected
Private & Secure
HIPAA Compliant
GDPR Compliant
Never Sell Data
Your data is yours: You get full control over who can view your information. CareClinic keeps all your data secure and encrypted.