Acute Intermittent Porphyria Tracker

Take Control of Your Acute Intermittent Porphyria Symptoms & Triggers

Living with Acute Intermittent Porphyria can be challenging. Our tracker helps you monitor severe abdominal pain, nausea, vomiting, identify triggers like stress or diet, and see how your treatments are working. Take back control of your health journey with actionable insights.

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Acute Intermittent Porphyria Symptom Tracker: Your Health Assistant

Living with Acute Intermittent Porphyria means dealing with severe abdominal pain, nausea, vomiting, and more. But here's the truth: Data is your most powerful tool. Every logged symptom reveals patterns—so you can take informed action.

Acute Intermittent Porphyria (AIP) is a rare genetic disorder affecting heme production, characterized by attacks of severe abdominal pain, neurological symptoms, and psychiatric manifestations. Tracking symptoms helps identify triggers and monitor disease activity.

Key Acute Intermittent Porphyria Symptoms You Should Track

Struggling with symptoms like these? Tracking them reveals patterns, triggers, and how they impact your daily life.

Severe abdominal pain

Nausea

Vomiting

Constipation

Muscle weakness

Numbness

Tingling

Mental changes

Seizures

Red or brown urine

Tachycardia

Hypertension

Track Your Acute Intermittent Porphyria Treatments

Tracking how these common treatments affect your symptoms can help you and your healthcare provider optimize your care plan:

Hemin (Panhematin)
Glucose infusions
Pain medications
Anti-seizure medications
Beta-blockers
Givosiran

Our tracker helps you monitor when you take medications and how they affect your symptoms over time.

Standardized Acute Intermittent Porphyria Assessments

Complete these evidence-based assessments in the App to measure your severity and monitor your progress:

⚡ Knowledge Is Your Superpower

The difference between feeling overwhelmed by Acute Intermittent Porphyria and feeling in control starts with data. When you track your symptoms, you transform uncertainty into clarity. Every data point brings you closer to understanding your unique patterns.

It's free to try for anyone—whether you're managing your own condition, supporting a child, helping an aging parent, or assisting a partner. Our tracker adapts to your specific role in the health journey.

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How the CareClinic Acute Intermittent Porphyria Symptom Tracker Adapts to Your Needs

Adults

Caregivers

Parents of Children

Young Adults

Your Complete Acute Intermittent Porphyria Management Toolkit

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Success Stories from Our Community

"This tracker doesn't just collect data - it provides insights. I confirmed that My seizures always peaked 2 days after physical activity, which helped me make better daily decisions."

Rowan-W., treating Acute Intermittent Porphyria since childhood

"My with Acute Intermittent Porphyria became so much easier once I started tracking. Using the symptom tracker revealed patterns in my red or brown urine I never noticed before, giving me confidence I never had before."

Zara E., working with Acute Intermittent Porphyria since childhood

Take Control of Your Acute Intermittent Porphyria Journey

Transform from feeling like a passive patient to becoming an informed self-advocate. Join thousands who've discovered new insights about their condition.

Designed by people who understand the daily challenges of managing chronic conditions, we're here to support you and your ❤️ ones.

Download Your Acute Intermittent Porphyria Tracker Now

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References based on studies by:

Dr. Robert Desnick (Mount Sinai School of Medicine) Dr. Karl Anderson (University of Texas Medical Branch) Dr. Herbert Bonkovsky (Wake Forest University)